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Mum’s agony as daughter, one, diagnosed with rare condition that will gradually turn her baby girl into stone

A MUM has spoken of her heartbreak after her one-year-old daughter was diagnosed with a rare condition that will gradually turn her body to ‘stone’. Lexi Robins from Hertfordshire was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP), which is thought to affect just one in two million people. Little Lexi Robins was diagnosed with Fibrodysplasia Ossificans Progressiva Credit: BPM The ultra-rare genetic disease gradually replaces connective tissues, tendons, ligaments and muscles into extraskeletal bone. After the earth-shattering news, her parents, Alex and Dave were met with the news that funding isn’t available on the NHS. The couple decided to launch […]

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